Whether you have recently found out you have HIV or have known for a while, you may have questions about starting HIV treatment. You may have heard about HIV treatment – also called antiretroviral treatment (ART) – or know someone else who is taking it. Talk to your doctor about any questions you have – the information on this page should help you to think about the questions you might want to ask.
Can HIV be treated?
HIV can be treated. Many people living with HIV start taking treatment and stay healthy as a result. Current treatment for HIV is not a cure for HIV, but it can keep HIV under control.
Antiretroviral treatment works by keeping the level of HIV in your body low (your viral load). This lets your immune system recover and stay strong. Keeping your viral load low (or undetectable) also helps to prevent HIV being passed on to your sexual partners.
With good healthcare and treatment, many people with HIV are living just as long as people who don’t have HIV.
You can continue to have relationships, to work or study, to make plans, to have a family – whatever you would have done before your HIV diagnosis.
When should I start treatment?
Without treatment, people living with HIV can become ill because of the damage HIV does to the immune system. The immune system is your body’s way of protecting itself from illnesses caused by germs, bacteria or infections. It is now recommended that people living with HIV start antiretroviral treatment as soon as possible. In many places, the decision about when to start treatment is still dependent upon on a CD4 count test, which looks at how many CD4 cells are in a small amount of blood.
The CD4 cells (also called T-helper cells) are an important part of the immune system because they fight germs and infections. HIV attacks CD4 cells and reduces the number of them in your body. Without treatment, HIV slowly weakens the immune system, making it harder for your body to fight off illness or infection. You and your healthcare professional should discuss the best time to start treatment.
When I was first diagnosed, in the early-90s, life was very different. HIV treatment was awful, with around 20 tablets a day at high strengths. And the side effects were much worse. Times have changed and so have treatments. There really is no reason why you should not live a normal life.
Other reasons to start treatment
Antiretroviral treatment also lowers your viral load, which makes it less likely that HIV will be transmitted or “passed on”. For this reason, it is important that all women with HIV who are pregnant or breastfeeding, take antiretrovirals to prevent HIV from being passed on to their baby. Anyone living with HIV who is in a relationship with someone who does not have HIV (a mixed-status relationship) should also consider starting treatment to prevent HIV transmission to their HIV negative partner, this is called Treatment as Prevention (TasP).
Being ready to start treatment
Perhaps the most important factor of all is whether you feel ready to start HIV treatment. Current HIV treatment has to be taken every day for the rest of your life. You might feel good about starting HIV treatment, because it is something you can do to stay healthy and strong. But it is also normal to feel worried about it, or to have questions. Give yourself time to prepare for taking HIV treatment every day.
In addition to talking to your doctor, you may find it helpful to talk to someone who has experience of taking HIV treatment. Many clinics have peer educators, who can offer support and information, or can put you in touch with community organizations and peer support groups.
What is the best HIV treatment to start with?
The drugs used to treat HIV are called antiretroviral drugs. There are several different types and they work in different ways. HIV treatment is made up of three or more antiretroviral drugs taken together. Sometimes, these drugs are combined into one pill. There are lots of antiretroviral drugs, and they can be combined in different ways.
What else should I consider?
If you have a choice of drugs, talk to your doctor about which combination might be the best one for you. If you are taking treatment for another health condition, hormone replacement therapy, or contraception (family planning), it’s important that your doctor knows about this, as one drug may affect another. Taking certain recreational drugs can cause your treatment to stop working properly, but it is important that you always take your treatment.
Most antiretroviral drugs are taken once a day, with or without food. However, some drugs are taken twice a day, or should be taken with food. If this might be something you find difficult, talk to your doctor or peer educator about your options.
All drugs – not just antiretroviral drugs – can cause some side-effects, particularly in the first few days of starting treatment. This is another topic you could discuss with your doctor, as it might also affect your choice of drugs. Your treatment will be monitored and you may be recommended to switch drugs if they aren’t working for you.
For more information on confidential HIV services across IL (free condoms, HIV testing and HIV clinical care, Medication or Premium Assistance, and PrEP) in your area, visit: www.hivcareconnect.com
Program Coordinator/ADAP Enrollment Specialist,
Illinois Public Health Association – HIV Care Connect
(309) 453-9042 confidential cell
HIV Care Connect is a program of the Illinois Public Health Association and is funded by the Illinois Department of Public Health